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Second guessing or being sure.

Prostate Cancer | Last Active: Nov 17, 2023 | Replies (55)

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@kjacko

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james1951, kjacko,
The 5 treatment high dose is done over two weeks. It is 3 days the first and 2 the next. This comes from those who had it. I had thought was all in one week but was advised is done over 2 weeks.

I had 30 rounds of proton over 6 weeks. It actually turned into 7 weeks as had 2 holidays in there.

My Mayo primary care doctor on my last visit stated some research was showing some increase in side affects with the high dose 5 day plan. But way to early to say this is norm.

He also said research going on about the need to do the water drinking to get bladder out of way and if sufficient to justify drinking the water. I really suffered with the drinking as had urge to go quite often. But if will help reduce adverse affect on bladder was glad to do it.

I think I posted but don't see it that if I had been offered the 5 day high dose I would have done it. I was not given the option. I think one reason was I have an ICD/Pacemaker and they wanted to keep as much chance of any radiation affecting my device. I know I had to have it checked once a week but was not affected at all.

I was given pencil beam and my pace clinic techs told me with pencil beam that any affect on ICD/Pacemaker would be very unusual. The drive to/from UFPTI from where I lived was 40 minutes each way. So a reduced number of days would have been great. I just wished Mayo Jacksonville offered proton radiation and not just photon as is where I have all my other medical appts. and treatments.