← Return to Neuropathy with FOLFOX chemotherapy - Stage Three colon cancer

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@rjjacobsen

I had FOLFOX6 and shortly after starting they dropped the OX (oxaliplatin) because of severe side effects. I had some, but not severe neuropathy - mine was mainly numbness and tingling in fingers, hands, feet and the mouth. Had some dizziness as well. Voice, hearing, vision and sense of taste can be impacted. Anything in which the nervous system is involved can be messed up.

I did not have severe pain, so I didn't take Gabapentin as suggested. I'm approaching 2 years after I ended chemo and still have some minor numbness and tingling remaining.

I saw a reference that it takes between 1 and 2 months to recover from each month of chemo, which seems correct in my experience, but the source wasn't from a verified source like Mayo or Cleveland Clinic or Sloan-Kettering.

It was difficult for me to be patient with myself dealing with the post-chemo symptoms. There was so many things I struggled with. I also had cancer surgery/chemo/recovery during the time when COVID was spreading fast so I was not allowed to get out much until a year after I completed chemo - the thinking of my medical team was that my immune system wasn't at full strength.

All my best to you for success and full recovery.

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Replies to "I had FOLFOX6 and shortly after starting they dropped the OX (oxaliplatin) because of severe side..."

Very helpful, thanks. Since I am living away from the U. S. THINGS ARE MORE COMPLEX. OX protocol remains the same around the world, my oncologist told me.