Replies to I have had collagenous colitis (of microscopic colitis) for about 6 years; I figure my celiac…

Discussion

Autoimmune Diseases | Last Active: Nov 1, 2023 | Replies (123)

Comment receiving replies

@kayabbott

I have had collagenous colitis (of microscopic colitis) for about 6 years; I figure my celiac (14 years) just decided to travel some. No gluten, NSAIDs, and minimal legumes control it for me (good to keep a food log to see if there are triggers). I was on baby aspirin for 5 days due to long covid, and that was enough for a flare.

Jump to this post

Replies to "I have had collagenous colitis (of microscopic colitis) for about 6 years; I figure my celiac..."

pb50 | @pb50 | Nov 1, 2023

I have had RA since 2012 and am on Remicade - an anti TNF biologic drug I receive by infusion every six weeks
18 mos ago I had acute onset of diarrhea that seemed to be related to Yersinia and that was treated with Bactrim, which helped initially but apparently contributed to c-Diff. Months of horror and living no further than a few feet from a toilet, I had a Colonoscopy and Collagenous Microscopic colitis was the diagnosis. A 3 month step-down regiment of the wonder drug Budesonide followed. I was asked to stop taking NSAIDs, PPIs, SSRIs, and reduced my statin to a low dosage. That has worked to keep recurrence at bay.
5 mos ago I had a surgery for an unrelated condition and the post surgical drugs - like narcotics - put me all out of whack. My doc and I are trying to right the ship without budesonide since he wants to Preserve use of that for more serious events.

And this is how I expect it will go. A period of calm and something unexpected throws a wrench in life. *sigh*

VIEW AND REPLY