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Non treatment of MAC

MAC & Bronchiectasis | Last Active: Nov 5, 2023 | Replies (40)

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@msk

Hi Sue
Met my pulmonologist yesterday and had a good conversation about my lungs. He told me that yes my ct still showed the infection but culture are negative. Like you mentioned as long as i am not feeling sick we continue to monitor, having ct every 6 mo and see what changes are happening or not. He says that i have lots of nodules, they wax and wane, but need to follow up in those due to my neck cancer. I worry about that. He told me to enjoy my life and do the airway clearance, excercise, my albuteral, and use my flovent when i feel wheezing to clear it. I just needed to realize that this will be with me for the rest of my life. I thought the meds would eliminate it.
Glad to be in this group to be able to share how we feel without being judged. Thanks for your thoughts. On my way to play golf and walk its my excercise! Life is good and all will be well😘

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Replies to "Hi Sue Met my pulmonologist yesterday and had a good conversation about my lungs. He told..."

Miriam I am so happy for you. If you have wheezing at times, does that mean you also have asthma? If so, there is a new protocol for treatment that replaces the albuterol nebs and [at least for me] 95% of the need for a rescue inhaler.
It is called Symbicort. It is a combination of formotorol and budosenide.
Sue