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Conflicted on taking medication

Breast Cancer | Last Active: Nov 8, 2023 | Replies (99)

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@7318

Was taking Tamoxifen 20mg to start then 10 mg Took it for 3 months I had extreme fatigue, hot flashes 7-8 at night Frequent urination 7-8 times a night
I stopped for 3 months took 3 months to start feeling better had a lot of swelling in my feet and legs Never had that before
I know a lot of women take it without all these issues
I started Tamoxifen 5 mg this week Doesn’t come in 10mg so cut them in half I’m taking them in the morning Some hot flashes but so far not as frequent I have had trouble sleeping which I normally sleep pretty could before taking this drug
Saw surgeon today not going to see radiology going to see how I do on lower dose and a mammogram in 6 months
See what works for you and communicate with your oncologist
Wishing you the best and less anxiety about this drug What surgeon told me is your body takes sometimes 6 months and side effects can lessen
And some women just say they feel a little warm at night
Hope this helps a little🙏

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Replies to "Was taking Tamoxifen 20mg to start then 10 mg Took it for 3 months I had..."

Thank you for the response. It helps to hear other people’s experiences. I hope taking the low does will make it bearable for you!
I am going to ask my oncologist the how likely the cancer is to return when taking tamoxifen vs. not taking it.
I really don’t want to have to take it but maybe I will ask about trying 5mg and see how that goes.
Thanks again and take care!