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I am so sorry to hear that you are still in limbo and not feeling support from the surgeon; contact the American Cancer Society and see if they have any "navigators" who can support/ educate/ prepare you for your ongoing treatment plan. Sometimes you can even find a navigator through your doctor or hospital. The navigators are often RN's or other medical personnel who understand and have experience in the field. It is important that you find somebody with whom you have a good rapport, as this is so important to have a team you trust and can confide in.
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absolutely,my friend your spot on all the videos I have watched and what they say is of course invaluable -Ihadnt fully realised that Mayo is an American company -I do relate to Macmillan a large organisation in England and they too are very helpful -though my progress would have been A1if it hadnt been that theres definitely no openness nor actual communication -im seriously thinking about putting it on hold but have no knowledge of what they the medical team know even the fact that I suffer GAD-and stress --and my consultant did not allay my fear when i asked if I could take a 2mg diazapam -im left in limbo!! So thanks everso much for that info much appreciated..