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I am having a masectomy soon as I have now got lobular cancer after a lupectomy fpr DICS==about a year laterllobular cancer was told to me after urging my consultant/surgeon over the phone---im afraid iam still in limbo and have had to deal with this alone and im77years----I got no explanation as to what or where i am with this type of cancer and feel have been treated with indifference.. and she gives me the impression she is either going through some form of crisis herself or simply cant relate to people shes quite young with 3 of a family---so im grateful for any kind of information available.
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I am so sorry to hear that you are still in limbo and not feeling support from the surgeon; contact the American Cancer Society and see if they have any "navigators" who can support/ educate/ prepare you for your ongoing treatment plan. Sometimes you can even find a navigator through your doctor or hospital. The navigators are often RN's or other medical personnel who understand and have experience in the field. It is important that you find somebody with whom you have a good rapport, as this is so important to have a team you trust and can confide in.