← Return to Had lobectomy in 2020 still having radiating severe nerve pain.

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@lls8000

Hi @raffi, Welcome to Mayo Connect. I'm glad that you found us. Two different mutations is rare, lucky you, right?! Ugh. The weight of the diagnosis is so difficult to deal with. Don't be afraid to reach out for help, possibly counseling or other resources that your doctors can point you toward to help too. I think it took me about two years to really process what happened and to realize what my future may look like. I'm 53 now, diagnosed ALK+ at the age of 49. It sounds like you are doing great and taking steps to keep healthy. Try to focus on the good. Your cancer was found early, the margins and nodes were clear, the doctors are taking the right steps to monitor for any other cancer growth. Those are all really positive signs! There is real hope in the lung cancer world, as treatments are getting better and better. While EGFR and KRAS have been traditionally difficult to treat, researchers are learning more all the time. There is no reason to believe that your cancer would come back, but the surgery has bought you more time. Time is everything in this game; time to spend with your son, and time for the research to advance in case you happen to need it again.
How often do you have CTs to monitor your lungs?

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Replies to "Hi @raffi, Welcome to Mayo Connect. I'm glad that you found us. Two different mutations is..."

Hi Lisa! Thank you for your reply and your kind words. I will have CT scans every 6 months for the first 3 years and then one annually. I am keeping positive and focusing on my son and my life. I hope your cancer is under control and I wish you so much joy!!