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Psychological effects of living with neuropathy

Neuropathy | Last Active: Dec 1, 2023 | Replies (106)

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@julbpat

I've been thinking about your frustrating situation. I have some of the same issues, and maybe my solutions will help. I don't love telling the world about my bowel issues (sigh) but oh well, we're all helping each other, right?

So I am a retired nurse, and I tend to think of myself as my own patient. Even though your bowels are unpredictable and have nerve damage, there are some certain facts. One being, if the bowel is full, especially the end part, near the rectum, it's going to empty at some point! Not on a predictable schedule, but if that part is empty, you stand less of a chance of accidents.

lf it's been a few days since your last bowel movement, you stand a much higher chance of a sudden bowel movement. In a restaurant. During a church service (me). While walking on the streets of NY with your son (me). Of course, in that case, you go directly to a bathroom with no embarrassment, even if your son doesn't believe Walgreens will let you use their bathroom!

This is much less likely to happen if that part of the bowel is empty. So I take Colon-Max, which I read about here and buy on Amazon, every single night. If I know my bowels are too full, I also take Ex-lax or similar. Every morning I take prescription Motegrity. All this pretty much guarantees lots of time in the bathroom every morning. Sometimes 10 trips over 2 hours. But then I know it's "safer" to go out and be away from bathrooms.

This is just my way of handling bathroom emergencies. I sacrifice my mornings in order to enjoy my errands and activities later. Mornings are also when I usually struggle with vertigo, so I just get it all over with at one time!

On the flip side, if I have to go to a morning activity, I do the opposite - no Colon-Max, skip my Motegrity. Then the process starts again because my bowel gets too full, the pressure builds up, I have unpredictable bathroom trips in public places.

Oh, the fun of neuropathy! Hope this helps though.

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Replies to "I've been thinking about your frustrating situation. I have some of the same issues, and maybe..."

I have progressive sensory motor axonal neuropathy (say that five times fast!) and for now, at least, my symptoms neuropathy are in my legs and feet. Is it possible that my neuropathic symptoms will migrate to my bowels? I had terrible constipation with no relief from OTC nor prescribed drugs..then I started eating bran cereal and, voila!! Constipation ended. I'm so sorry to hear how much time you have to 'budget' each day for bathrooming (is that a word?). Thanks for posting. min