← Return to Radiation side effects with H&N cancer. When will they ever end?

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@bsn69

My sister, 68, had squamous cell carcinoma, stage 4 on the left side of her tongue.
She had the 8 hour surgery to remove 1/3 of her tongue.
Prior to the surgery (while in the operating room) they removed 5 teeth on her left side.
To rebuild her tongue, they took the skin , tendons blood vessels etc. from her left forearm to rebuild her tongue.
All of the above were so incredibly hard to heal from, from the ng tube, the loss of taste, saliva, difficulty swallowing, and eventually trying to eat. she lost 30 lbs. and has a hard time keeping her weight up.
After her 7 weeks of Radiation to her tongue area, the oral nightmare will never end.
Most of her bottom teeth fell out; she had 4 left that needed to be pulled.
The oral surgeon could not pull them until she completed hyperbaric chamber treatments to help strengthen her bone, so he could extract them, and the plan was to fit her with a permanent partial bridge on the bottom. He says he can place it and hook it to 2 of her existing bottom teeth., After 10 more hyperbaric chamber treatments.
So the nightmare continues. And, not to mention the tooth abcesses,, etc.

It is very difficult to find any information regarding any way to help head and neck cancer patients with any viable solution to help with replacing teeth, stopping them from rotting, and all of the other horrible post radiation treatment issues with their oral health destruction.

And, the COST of it all. All of the dental visits, tooth extractions, oral surgeries, medical visits
mostly caused by oral health and due to radiation, are NOT COVERED UNDER MEDICAL!
Dental insurance does not cover very much.
Any thoughts about this? Anyone had any good treatment and good news about saving your teeth? Or any good advice on who to go to for excellent dental, oral treatment that has been life changing for your recovery? Would love to hear some advice. Thank you!

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Replies to "My sister, 68, had squamous cell carcinoma, stage 4 on the left side of her tongue...."

Hi @bsn69 What your sister has and is going through is a rough time for certain. And I agree with the argument that dental should be included in the health insurance costs when it is incidental (no pun intended) to the cancer and/or surgery. One of these days we need to revolt against the insurance companies on that issue. I personally have paid out of pocket close to $50K for "dental" because of cancer.
Advice to sister is to heal first, then fix what is broken. Healing from this ordeal takes far longer than anyone might think.
I have not much faith in hyperbolic treatments as the science is not very conclusive on the help it may do for the patient.
One day at a time and I pray her days will get better. You are a good sister.

My heart goes out to you both.
Loosing teeth is horrible at best.
Prior to my stage IV chemo/radiation treatments my oncologist insisted that my wisdom teeth, crown and 2 teeth with fillings be removed prior to treatments.
After the extractions I had to wait 21 days to heal before treatment could begin.
My regular dentist also gave me fluoride treatments prior to treatments and continues fluoride every 6 months.
I also brush my teeth with toothpaste and prescription fluoride toothpaste several times per day. I am nearly 7 years out and so far so good, thank God!
I know this doesn’t help your sister but it may help someone who will be starting cancer treatments.
Wishing you the best.

MOJO