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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)Comment receiving replies
I would appreciate if posts would contain less acronyms (?)
I’m new to all this and have no idea of what you are talking about, sorry (:
Replies to "I would appreciate if posts would contain less acronyms (?) I’m new to all this and..."
@cblue I’m still having to look things up!! It’s all the medical jargon that no one understands until they have to use it or it happens to them. Here is what NIH (national institutes of health) says about IVIG (intravenous immunoglobulin)
https://www.ncbi.nlm.nih.gov/books/NBK554446/#:~:text=Intravenous%20immunoglobulin%20(IVIG)%20is%20a,%2C%20infectious%2C%20and%20inflammatory%20states.
You may want to start a little notebook that lists the ‘names’ as they pertain to Sjögren’s syndrome.
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To CBlue: I'm sorry, I have the same frustration at times, but that is what the medical people call it too. It is where they collect plasma from lots of people and only give you the gamma globulin which you then use to fight viruses etc. I was also IgG low at the time (my doc tested me) and felt I couldn't lose by being boosed I do feel pretty healthy for haveing as many diagnoses as I do but my neuropathy hasn't really "gone away". Maybe a tiny bit better when I'm haveing a good day pain wise. I ony have balance symptoms with my neuropathy, no sensory. So I am spared the pain and numbness, etc.