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Giant Cell Arteritis Diagnosis

Polymyalgia Rheumatica (PMR) | Last Active: Nov 3, 2023 | Replies (50)

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@johnbishop

@runningfree, Please don't feel stupid about asking any medical questions. Questions are how we learn more about our condition and there are no stupid questions. You mentioned none of the tests your doctors supported the Giant Cell Arteritis (temporal arteritis) diagnosis.

"The gold standard for diagnosis is tissue confirmation from a temporal artery biopsy. At the same time, the presence of elevated inflammatory markers such as an ESR or CRP, in combination with symptoms and clinical signs outlined above, may be suggestive of temporal arteritis."
--- Temporal arteritis - PMC - NCBI: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5765614/.

Did you have a temporal artery biopsy?

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Replies to "@runningfree, Please don't feel stupid about asking any medical questions. Questions are how we learn more..."

Yes. That's why I have the swelling now on the inside instead of showings as bad as on the outside. The dr that did the biopsy was so rude. I was too young and by the time he got me in the symptoms were gone. Because the other dr treated me right away with a high dose of prednisone. Even the dr that did the biopsy said he was not going to find anything because it was a slim chance, but he did a biopsy of both temples bilateral just in case.
The ENT dr was not happy with the other one waiting so long to do the surgery because he said there is not much right there that could cause that and one being sinuses which was not the case and the other being that. And being it didn't respond to the ER's meds but did the prednisone....