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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 20 minutes ago | Replies (859)
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@liv38556

I replied on this conversation thread once before I think. I’m Lois V. Married 43 years with 2 grown children. I was dx’d with a soft tissue Sarcoma in 2021 on my left thigh and had it removed by a Surgical Oncologist at Vanderbilt Hsp in Nashville TN. We don’t live nearby to any Mayo hospitals. It seemed to stem from a dog bite I had 10 years prior. Vanderbilts RedCap team approached me about wanting me to be a part of a sarcoma study for 6 years. I agreed. They have sent me questions and they recently drew 5 vials of blood from me. A medical oncologist I saw after this wants me to have a Pet scan. I haven’t had it done yet. Has anyone heard of a mobile unit Pet Scan?

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Replies to "I replied on this conversation thread once before I think. I’m Lois V. Married 43 years..."
annalyzethis | @annalyzethis | Nov 4, 2023

Hi Lois, I had my sarcoma also on the posterior side of my left thigh; it was removed in May of '22. It's interesting about your cancer being connected to a dog bite. I was told that science
hasn 't yet figured out the etiology of sarcoma. I had a Pet scan recently and have a meeting
with my doctor scheduled for Monday the 13th of this month to determine if the masses in
my lungs are from the sarcoma which everyone seems to think it is; I'm still hoping for an
inflammation. I also have a mass in my colon where I had colon cancer in 1999. The Pet scan
will determine which I have or both. I've never heard of a mobile Pet scan. I live rural and
the local hospital did have a temporary mobile CT scan set up in a parking area for awhile
but has been replaced by a permanent one. All the Best.

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joe1955 | @joe1955 | Dec 13, 2023

Yes. No problem. It was located in the parking lot of a medical center and could be moved when needed to other facilities---yet rarely moved. It has ramps/stairs up to entrance, small waiting area that fit 2 people, and the machine. No problem.

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verena | @verena | Dec 18, 2023

I just had a PET scan done in a mobile unit. No problem. The hardest part was getting up the 5 steep steps but they do have a little elevator if need be. Inside it was a little cramped but comfortable. Great I had technicians who work in the unit all the time so they knew what their patients need - like a blanket ( I live in a cold climate).

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