Connect
← Return to Colostomy questions: Adhesion to other organs and odds of survival
Discussion
Colostomy questions: Adhesion to other organs and odds of survival
Colorectal Cancer | Last Active: Jan 1, 2024 | Replies (19)Comment receiving replies
Still in the hospital, due to an infection and low blood pressure, was in the ICU for 4 days and got flooded with fluids and antibiotics. She has 60lbs of water retained and is so swollen it is blistering and seeping out of her skin everywhere. Oncology won’t even talk to us until she gets out of the hospital, which is very disappointing. Feel a bit abandoned by them.
Replies to "Still in the hospital, due to an infection and low blood pressure, was in the ICU..."
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6465391/
I found 2 cases where it spread to other organs and adrenal glands where they were able to do a resection/ colectomy/ chemo and then removal of the adrenal glands after. And survival was longer than 9 years. I believe you’re not getting a lot of information because for it to spread to the adrenal glands, it sounds like it’s very very rare, and they may not have any experience with it. It doesn’t excuse them from ignoring you, or not addressing the issues, but that may be why. I will pray for your wife. It sounds like there could be hope but with everything else that’s going on with her it’s going to be a uphill battle for sure. It’s very hard, but try to stay positive and keep an upbeat attitude because it really does help with the outcome. ❤️. Stacy
Connect
@chuckmii, I'm sorry you feel abandoned. This is when you need support the most. Have you considered contacting hospice? They may be able to provide support and care for you and your family as well as your wife while in ICU and the transition after ICU.