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Question regarding “dead” tumor

Pancreatic Cancer | Last Active: Nov 8, 2023 | Replies (26)

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@ncteacher

That's interesting. Here's my question: How do you get your oncologist to prescribe more than the requisite 12 cycles of Folfirinox? I am having my 12th cycle on Tuesday 10/31 (trick or treat!). My CA 19-9, which was pulled just before cycle 11 was administered, was 70. It has gone down every time, so with luck, it'll be down again with the sample pulled Tuesday, then down again when tested after cycle 12. If I test "normal," would an MD approve additional chemo? Would insurance cover it or deny it? To remind, I am stage 4, considered inoperable due to blood vessel involvement. I am not considered a candidate for radiation because of an undetermined number of mets. We're doing another CT scan without/with contrast on 11/8, and my oncologist plans to talk about maintenance therapy at our appointment 11/10.

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Replies to "That's interesting. Here's my question: How do you get your oncologist to prescribe more than the..."

@ncteacher, may I ask you to let us know, after the 11-10 appt., what your onc. considers "maintenance therapy"? I'm asking bc I'm very confused about what comes next for me, after a Whipple that was less successful than I had hoped. (I'll see my onc. this week; it's not that I think I could march in and say, "Give me what she's having!", but for whatever reason, having info about others' treatment helps.)

comments by @stageivsurvivor and @mayoconnectuser1 make me want to continue with lots of IV chemo; you raise the all-important question (Will insurance say yes?), which makes me wonder whether that would even be possible.

Thanks.