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Is everyone with pNETs on creon?
Neuroendocrine Tumors (NETs) | Last Active: Apr 26 11:19am | Replies (20)Comment receiving replies
Yes, Cap/Tem is chemo in oral form. Ten days of Cap and day 11 through 14 with Tem and anti nausea meds added. Fourteen days off following with one monthly lanreotide injection during the days off of chemo. How was the PRRT? It has not been offered to my husband and I’m curious why.
Replies to "Yes, Cap/Tem is chemo in oral form. Ten days of Cap and day 11 through 14..."
My CAPTEM treatment was the same minus the injections. The last two months have only been capecitabine. My new scans are Friday. We went 4 months between scans to see how the capecitabine did on its own. I am ok living with the cancer in me as long as we can manage it. I am in no rush to have surgery.
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I’m not sure why things are offered in a different order
Some things I read say Lanreotide is the first line of treatment and now PRRT can be
He has felt really good. Pain level is way down. He was having a lot of pain. I think the tumors might have been pressing on a nerve. The PRRT is suppose to shrink them. So I’m hoping that’s the case. He was very exhausted for about a week after treatment
Treatment is every other month for 8 months. Total of 4 treatments
The one on his pancreas was only 2cm. Biggest but multiple on his liver I think was 5 cm. I’ve heard of people having a lot larger with no pain. Just shows everyone is so different
Are you seeing a specialist?
We are not at this time. I still will ask about the oral chemo Still hopeful this PRRT will stabilize and shrink the tumors for a better quality of life for him.