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Is everyone with pNETs on creon?
Neuroendocrine Tumors (NETs) | Last Active: Apr 26 11:19am | Replies (20)Comment receiving replies
Hello. By the time he was diagnosed he had lost almost 40 lbs. He has only been on Lanreotide monthly and creon with meals. Just recently he has had his first round of PRRT Feeling better than he has in awhile. It took about a week after treatment to feel this good
CAP/TEM has never been offered as an option yet Is this chemo therapy? Is it pill form? I see a lot of people with the same diagnosis are on this. I wonder why it wasn’t an option for us I guess it’s worth asking the Dr
Thank you for the reply
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Yes, Cap/Tem is chemo in oral form. Ten days of Cap and day 11 through 14 with Tem and anti nausea meds added. Fourteen days off following with one monthly lanreotide injection during the days off of chemo. How was the PRRT? It has not been offered to my husband and I’m curious why.