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New PMR patient, wondering if mornings will become pain free someday
Polymyalgia Rheumatica (PMR) | Last Active: Jun 1 11:10am | Replies (120)Comment receiving replies
My assumption is that when folks on this forum are talking "pain-free" they mean, as I do, pain from PMR. However, a personal side benefit of 30-35 mg of prednisone (for me at least) is literally no pain almost anywhere (i.e I can finally get into catcher's crouch when reading putts or playing with pets). However, this comes with ridiculous trade offs like shaky hands, a state of constant "unrelaxed" heightened (30 cups of coffee) awareness, and often a paradoxical bit of steroid myopathy (a strange feeling of weakness and dizziness while still feeling amp'd).
I'm gonna assume that non-PMR 69 yr old bones pain will creep back into my life when the weening continues, but hopefully not the shoulder bursa sack pain (PMR).
Ted
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It sounds like you are experiencing some prednisone side effects.
I think we are on the same page when we say "no pain". For me, any attempt at a golf swing would be ill-advised for my 69 year old lumbar spine. A neurosurgeon recommends fusing my lumbar spine. However, I don't think it would be wise to fuse any of my bones.
The neurosurgeon describes my gait as "functional" instead of normal. I have a rollator so I won't fall. My rollator allows me to sit down whenever I want. I just wish my rollator worked better when I want to use the stairs.
I used to describe PMR in terms relative to my age instead of a level of pain on a scale of 1 to 10. I would tell my rheumatologist that PMR made me feel like a 120 year old person when my actual age was only 60. For emphasis, I said PMR felt like rigor mortis was setting in.
I'm trying to put PMR and the chronic inflammation in my past. I'm trying to move on. I'm over it thanks to the biologic I take.
The biologic has allowed me be on zero prednisone for the last 3 years. My first prednisone dose was 35 years ago. My endocrinologist says "decades of prednisone use." I can't begin fathom how many mg's of prednisone I have ingested during all of those years.