I had high grade bladder cancer that did not respond to BCG so I am seven months post radical cystectomy/ ileal conduit and doing well. It sounds like something to watch ongoing but not to be too upset at this point. I also have IBSD and it is more of a challenge than dealing with the urostomy. I go to UW hospital as well but am retired Mayo Jacksonville. Wish I could get up to Rochester. I’m four hours south. What are they doing for your IBSD?
Keep an eye out for hematuria and keep up with Mayo urology but don’t worry about it. Hang in there. You’ll be okay.