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DiscussionRecommendations on specific clinics for long COVID
Post-COVID Recovery & COVID-19 | Last Active: Mar 14 2:16pm | Replies (25)Comment receiving replies
Replies to "I go to Johns Hopkins Long COVID Clinic. You have to be referred by a physician...."
Not everyone has the same symptoms. My autonomic nervous system has been damaged and I have POTS , Neuropathy, Chronic Regional Pain Syndrome (extreme neuropathy), gastroparesis and one auto immune diagnosis and am being tested for another. I wear an abdominal binder so I can sit and stand without blacking out. I gained weight but barely eat and have an aversion to lots of foods. When I started with the long COVID clinic, the first thing they did was ask me a lot of questions. I then told her what I was experiencing. Then they recommended a biopsy, a cardiologist and then Physical Therapy. Your treatment plan will depend on you and your symptoms. Good luck! I hope we can all find a way through this!