← Return to Recommendations on specific clinics for long COVID

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@smdawson540

I go to Johns Hopkins Long COVID Clinic. You have to be referred by a physician. They have been wonderful. I live 2 hours away from Baltimore so this was the most convenient place to go. I have had other experience with Johns Hopkins and am/was still very satisfied with their level of care. I saw a cardiologist. I am working with a Physical Therapist who is wonderful and knowledgeable. It is so wonderful to be somewhere that knows what is happening with my health and has plans of how to deal with it. Everything I have is non-curable but symptoms can be mitigated through medicine, medical equipment and physical therapy. It took 3 years for me to be diagnosed and get to this clinic. It has been a life saver.

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Replies to "I go to Johns Hopkins Long COVID Clinic. You have to be referred by a physician...."

Not everyone has the same symptoms. My autonomic nervous system has been damaged and I have POTS , Neuropathy, Chronic Regional Pain Syndrome (extreme neuropathy), gastroparesis and one auto immune diagnosis and am being tested for another. I wear an abdominal binder so I can sit and stand without blacking out. I gained weight but barely eat and have an aversion to lots of foods. When I started with the long COVID clinic, the first thing they did was ask me a lot of questions. I then told her what I was experiencing. Then they recommended a biopsy, a cardiologist and then Physical Therapy. Your treatment plan will depend on you and your symptoms. Good luck! I hope we can all find a way through this!