@jjevitts Oh, no! Not at all the results you hoped for. You are so right. No one wants to hear the word “cancer” and least of all “metastasize”.
The word that kept coming up in my radiation therapy following a recurrence of endometrial cancer was “hope”. I will tell you it’s very difficult to have hope when getting the news that you just received. But I get it. I’m still here and so are you. So there is Hope. As you wrote there are new treatments available. There is a huge amount of research in cancer including endometrial cancer.
I’d like to say, @jjevitts, that thank goodness you listened to your body and you pushed and pushed for follow-up on the pain you experienced. You didn’t bury how you were feeling because the doctors kept telling you it wasn’t cancer.
I understand your comment that it will be hard to wait until next Thursday for the appointment with your oncologist. I’d like to share this. Once I got through the shock of learning my biopsy two years ago was a recurrence of endometrial cancer, I felt supported and listened to by my cancer team. There was something that was oddly soothing about the additional testing and meeting with other doctors as we/they figured out the treatment regimen. I had decisions to make given the recommendations that were made and I followed through with those recommendations. It disrupted my life and I tried to carry on with my usual routines as best I could. I look back at that time with gratitude as my only job was to focus on myself and my own health. This was the priority and I allowed myself to put others’ needs aside.
You are getting your care at an excellent academic medical center at the University of Michigan. If you decide that you want to get another opinion at Mayo Clinic, here is the link:
http://mayocl.in/1mtmR63
You can also ask your gynecologist to send a referral to Mayo Clinic. The referral information allows Mayo Clinic the medical information needed to move a request forward to the appropriate medical team.
I would like to encourage you with this. You have the skills to manage the feelings of anxiety. I have learned over the years that as much as I want anxiety to go away forever it does not. I’ve learned to accept that anxiety will be there and that I can look around in my tool box for what will help in the moment.
Is the weather pleasant enough today to go for a walk? Our Fall colors are quickly disappearing. Are your Fall colors still present?
@naturegirl15 Thank You!! I know you get it and it is so helpful and reassuring having you in my corner. I totally agree, I’m going to have to dig deep in my toolbox, but I know I can do it!
Yes, I’m very seriously contemplating Mayo. I know UM is an excellent hospitable with so many patients, but I can’t help feeling they dropped the ball a bit.
I’m curious how that works with treatment, are you able to get treatment closer to home or to you have to go there?
Our colors too are fading fast here, but even on this gloomy day the wind is still with Fall in the air. Wising you a glorious Sunday! 💜