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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: 1 hour ago | Replies (676)Comment receiving replies
To Dianaislooking: Yes, please tell what they are doing for you. As a fellow Sjogren's fighter, and someone who has Sjogren's neuropathy, I want to know all you might learn. Nothing is too trivial. Some of us might follow in your footsteps. I read your story and I find it both scary and inspiring. Please share. I am currently doing IvIg. Have you considered doing that?
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Hi there also have Sjogrens lupus nueropathy and pots/ Dysautonomia. Have u found relief with ivig ?? That was what was suggested for me when I went to Johns Hopkins.