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Sjogren’s Syndrome – Introduce yourself and meet others

Autoimmune Diseases | Last Active: Dec 30, 2024 | Replies (663)
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@suetex

To Dianaislooking: Yes, please tell what they are doing for you. As a fellow Sjogren's fighter, and someone who has Sjogren's neuropathy, I want to know all you might learn. Nothing is too trivial. Some of us might follow in your footsteps. I read your story and I find it both scary and inspiring. Please share. I am currently doing IvIg. Have you considered doing that?

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Replies to "To Dianaislooking: Yes, please tell what they are doing for you. As a fellow Sjogren's fighter,..."
butterfly9 | @butterfly9 | Oct 30, 2023

Hi there also have Sjogrens lupus nueropathy and pots/ Dysautonomia. Have u found relief with ivig ?? That was what was suggested for me when I went to Johns Hopkins.

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cblue | @cblue | Oct 30, 2023

What is Iving?

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