← Return to Abort chemo Rx & go straight to surgery while I am still Stage 1?

Discussion
Comment receiving replies
@stephenkogler

Hello,
My diagnosis was 10/27/2022. I was treated at Johns Hopkins in Baltimore. I followed their advice which was 8 FOLFIRINOX prior to surgery (we did 9) and 4 after (we did 3). The tumor stopped growing and shrank slightly after the third treatment. During the pre-surgery chemo pause (surgery was 4/24/2023) , there was some small tumor growth again. The fist scan post surgery was clear and my CA-19 last week was the lowest. 4. You have a tough decision. I approached it as a few months of morbidity vs. mortality. I felt good some days and miserable others. The worst week of sickness was the third week after surgery while withdrawing from the narcotics. Overall today, one year post diagnosis, I walk 2-4 miles every day and have a mostly normal diet (no animal fat) and I am looking forward to the next decade. Good Luck.

Jump to this post


Replies to "Hello, My diagnosis was 10/27/2022. I was treated at Johns Hopkins in Baltimore. I followed their..."

Hi, thank you for sharing. What stage were you in before surgery and how long after stopping chemo did you have to wait before your surgery? Was it robotic or open and how long where you in the hospital?
Sounds like you made the right decision ultimately and I hope to follow in your footsteps with how you are doing and feeling now!
The best of luck to you!
Marilyn

Hello, I appreciate your sharing. What stage were you when diagnosed and what did your tumor measure? How long did you need to wait for surgery after stopping your chemo?
Was your surgery robotic or an open procedure?
Were you still in the hospital during the third week when they withdrew you from the narcotics?
I am so happy to hear that one year later you seem to be resuming a normal life which is my intention also. Thank you for sharing.!
Marilyn