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Epilepsy or seizure disorder? Why stroke?
Epilepsy & Seizures | Last Active: Dec 29, 2023 | Replies (37)Comment receiving replies
@tonyde
I have never had a warning of any kind preceding any seizures although I did have one focal aware seizure (aura).
I still remember it. It was a déjà vu episode, all the rest of my seizures I have no memory of. Even though I was on the floor, in a crosswalk, porch, shopping center, school, police department, beach, roller coaster, stairs, elevator, aching and my tongue and cheek bit to pieces and painful someone always had to tell me I had a seizure. I bet I had one in every imaginable place. When my dad was in the hospital in Phoenix, my mom and I were living down there in a cheap duplex, and I had a seizure and fell through the wall into the next duplex. I would give anything to remember that. They sure were surprised.
I never did know of any triggers. I know it wasn’t poor quality sleep because back then I always slept at least 12 hours a night straight through. I haven’t had a seizure since one day in Aug 2019 when I had six.
Thanks for your reply,
Jake
Replies to "@tonyde I have never had a warning of any kind preceding any seizures although I did..."
Sorry to hear about the seizures in public, I've been fortunate not to have serious seizures in public except twice in a hospital and once in an office with only a few people.
I've had a sense of something being wrong before smaller seizures, don't remember any before a major seizure just finding myself on the floor still out of it with difficulty walking and talking sometimes for hours.
Reading everything here made me realize that the seizure may have wiped out any memory of a warning sign.
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Jake,
My seizures are mostly focal (simple and complex partial ones). I can just remember one tonic-clonic I had in 2019. This was such a strong seizure, that all what happened before the seizure was erased from my memory. I might have had a warning, but I can not remember. Perhaps the same happens to you?
Management of my triggers has helped me to control some of my seizures. For example, knowing that low sodium can cause a seizure, I do always take a drink with high sodium in the gym and when it is very warm over here (Gatorade and Tomato Juice). I do a daily epilepsy journal (even on days I do not have a seizure), which has helped me to identify my physical, external, and internal seizures. It has given me some work, but it has paid off.
Chris (Santosha)