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Psychological effects of living with neuropathy
Neuropathy | Last Active: Dec 1, 2023 | Replies (106)Comment receiving replies
so sorry to know you are having trouble with this. Will it help to find someone in the same boat because I am? SFN affects both my gut and my bladder. I have nausea and cramping that was first diagnosed as IBS. I am either constipated or going without control. I had to trash a whole set of sheets from that. My GI dr has another patient with SFN so he understands. My bladder problems have gotten much worse recently so I now wear pads all the time, even in bed. The other day I was late for a fire alarm bccause I couldn't stop. You're right - it stinks. The problem is so public and I'm always worrying if I will be embarassed or ruin clothes. I don't have much advice but I wanted you to know someone else has been there. Lots of hugs.
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I too wear a pad constantly and have for several years now.
I never know when I’ll leak, so I just constantly wear them.
I wear overnite with Always panties to bed because I don’t feel the urge to go when I’m asleep.
Really stinks!
Am worried that I’ll wet the bed when I’m in another bed at my kids homes or in a hotel so I just wear them even though lately I’m dry in the morning when I get up.
Funny thing is since I’m off Gabapentin and other meds, it’s seemed to keep me dryer than before.
I used to soak up a heavy pad and a depends at nite.
Now thank goodness it’s much better.
I am having stomach issues occasionally now after I eat dinner.
I will get severe cramps and violent diarrhea within 1/2 hr of eating.
Doesn’t matter what I eat, it can be a tuna sandwich one time, and then I’ll have it to eat another time and it won’t bother me.
My Gastro doc thought it might be a malabsorption issue but all the stool tests and labs came back ok.
Ruled out Celiac and Crones diseases etc.
So of course I’m afraid to go out to eat without being near my bathroom.
I’m afraid if I have an episode I’ll be in trouble, especially because I don’t feel it until it’s on its way out.
I’ll have a bad cramp and that seems to be it.
Wouldn’t want to be out in public somewhere and that happens.
Just another thing to deal with along with the rest.
Thanks for telling me your issue, seems we have that in common.