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@hopeful33250

Hello @jacee780 and welcome to the NETs support group on Mayo Connect. I was personally diagnosed a number of years ago with pancreatic cysts, so I understand, just a little, what you are feeling right now. It is frightening to have something wrong with the pancreas, isn't it?

When the pancreatic cysts were found, I had already had two surgeries for NETs in the upper digestive tract, so my thoughts went directly to the idea that, "it had spread." I'm happy to report that the EUS in 2016 did not reveal any pancreatic cancer but simply pancreatic cysts. Since then, I have had numerous follow up MRIs and the cysts remain stable, they have not increased in number or in size.

Having another disorder, like Sjogren's Syndrome certainly can create a feeling of unease. However, I would urge you to take this as a process, one step at a time. Don't try to cross any bridges before you come to them. I know that this is easier said than done but it is important to keep yourself calm so that you can think clearly, ask good questions and make good decisions.

Is there a date for the endoscopy yet?

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Replies to "Hello @jacee780 and welcome to the NETs support group on Mayo Connect. I was personally diagnosed..."

@hopeful33250
Good to hear your pancreatic cyst story. Yes, once you have cancer you can’t help but worry that anything new is more cancer. Hoping my pancreatic cyst will be as harmless and inactive as yours. I’ve had several liver cysts pop up in the past couple years too so I’m hoping the MRI will get a better look at those. Thanks for sharing.