← Return to Chronic Pain members - Welcome, please introduce yourself

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@leticia

Good morning ladies, I am new to this group, but see myself in all your posts. I have been dealing with Fibro for twenty years. Nine years ago I was diagnosed with breast cancer. I Had several surgeries along with six rounds of chemo. Presently, I have daily chronic pain -- lower back (if I overdo It) arthritis in both knees (the last six years I've been getting either steroid shots, or the sinvisc shots), neuropathy in both my feet (from chemo). My overall pain has gotten worst since chemo (I'm sure aging has also been a contributing factor too). Years ago I took between four - six Percocet a day. For almost two years now, I only take half a pill in the mornings. As most of you can imagine, dealing with all this starts to affect your emotional and mental wellbeing. I've seen counsellors at several different times. I do yoga and have been for at least 15 years now, I get massages every other week, and currently started acupuncture for my neuropathy (I feel fortunate to say -- it's working). I have been dealing with all this for so many years now, and I can honestly say I'm in a bad place emotionally right now. I take Ativan once a day to help wth anxiety stemming from all this. I am blessed to say I have a supportive husband in all this although I was never blessed with children. All my family member live far away. The friends I do have, I don't like to burden them too much with my situation. The fact is that my life very much has become "dealing with my health concerns with much resting in between". Not too many healthy people want to listen to your issues. It's a bad place to be. Thank you for listening.

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Replies to "Good morning ladies, I am new to this group, but see myself in all your posts...."

Leticia,

I signed on to this site only yesterday. I do empathize with your pain. I have a lot, too. I just wanted to let you know that it is not only ladies that suffer and keep searching for new remedies. I have spinal stenosis and both torn rotator cuffs. Opiates no longer work. I spent $6700 on a PEMF machine. It hasn't helped. We will be doing a spine stimulator as soon as the insurance approves it. My best friend is a psychologist with MS. She knows her situation, Another friend suffers primarily from fibromyalgia. She has spent many years trying to get people to believe her and to treat her pain. I understand pain. I hope I can contribute to as well as learn from this group. Best wishes. Michael

I, too, have a lot of pain. Several cancers, AL Amyloidosis, enlarged organs, Fibril deposits in nerves, etc. But I am learning one thing. It gives me lots of laughs at the expense of egotistic doctors. First, I have tried to track the false diagnoses I have been given. I believe there have been about 30 that have failed for some reason. And most Docs have given me prescriptions for pain, or to kill the diseases, and these did not work. Opioids, marijuana, chemicals, psychological fads, surgery, clothing, haircuts, manners of speaking, eating, walking, singing.  Books to read, TV shows to watch or don't watch. And on and on.
What I have learned is that most of them (Not all of them, but a lot of big name medical center staff) know less than I know, which is not much. So I liken it to the three stooges, or Red Skelton, and go to bed at night with a hearty laugh at another effort that did not work. I have seen about 50 doctors in the last ten years, and no two of them have the same diagnosis for me. So cheer up. There may be something coming down the pipe that will work. There may be a doc out there for you. Just keep a smile on your face, listen to some great music, and keep plugging along.

Welcome @leticia and @ayankeeinnm.
I invite you to explore the conversations in the Chronic Pain group as well as related groups, such as Bones, Joints & Muscles, Breast Cancer and Mental Health. You'll find the directory of groups here: https://connect.mayoclinic.org/groups/

Here are a few specific conversations you may be interested in joining:
- fibromyalgia pain https://connect.mayoclinic.org/discussion/fibromyalgia-pain-28e002/
- What Distracts You From the Pain? https://connect.mayoclinic.org/discussion/what-distracts-you-from-the-pain/
- Anyone here dealing with peripheral neuropathy? https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/
- Has anybody had an implantable neurostimulator for chronic pain? https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/
- Multiple Sclerosis (MS) - please introduce yourself https://connect.mayoclinic.org/discussion/multiple-sclerosis-ms-please-introduce-yourself/

Happy CONNECTing.

@leticia Hi. You sure have been through the "wringer", so to speak. I have some similar issues - fibro, RA, Sjogren's, Lupus, spinal stenosis, PTSD, restless leg, depression. I have been on antidepressants for years. I do find them very helpful. I have never had cancer or had to deal with the problems of chemo. I am so sorry you have gone through so much. Yes, at times it gets totally overwhelming and we stumble emotionally. Don't be too hard on yourself, as it is to be expected from time to time. And you may be short changing your friends - perhaps there is one or more who genuinely want to listen to you and let you vent about your pain and circumstances? I know I have friends like that and I, in turn, listen to them. Of course, every time I talk with them isn't totally about my pain and medical woes. I talk about positives, too, be they working in a garden or something silly my dog did or an interesting movie I saw. I also try to keep a daily blessing journal and remind myself of what I DO have instead of all the things I don't. I can walk - blessing! I have air conditioning - blessing! I have a good husband - blessing! I do not live in a third world country suffering from these conditions with no easy access to medical care - blessing! I also try to swim two or three times a week and recently purchased a treadmill so I can walk regardless of the weather. Sometimes, however, listening to up beat music and other things just doesn't cute it. At those times, allow yourself to feel it for a while. Be upset that life has handed you some truly bum cards! Realize that you don't always have to be "Susie Sunshine". Cry - it's okay. Let it out. Then pull yourself together, have a warm bath, and go back to putting one foot in front of the other. Sometimes we forget that we don't always have to have a "stiff upper lip". If your husband is supportive, go ahead and break down with him. Tell him just to hold you and not say anything. Just give you a moment to cry and be mad about all of it. You'll be okay. You have dealt with this stuff for years. Sometimes I think our emotions get stuffed inside and become toxic when we don't - at times - acknowledge them and release them. Even writing yourself a letter about how angry and sad and hurt you are and then reading it and burning it or flushing it down the toilet can give you relief. I pray you feel better soon! Hugs!

that should be "cut" NOT cute!