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Non treatment of MAC

MAC & Bronchiectasis | Last Active: Nov 5, 2023 | Replies (40)

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@dlynn1210

Remember we are all different. You cannot disagree,for all of us. For me after 4 years the cure became worse than the disease. I am currently in Denver seeing the doctors at NJH. They have done a bronscopy and will test to see if my body has grown resistant to the three meds. My hearing has taken a serious loss and my sight a small downward trend all due to the three meds. They told me for no do NOT take the meds. My pulmonologist ordered 3% saline - for almost 4 years I used 3%. Reading 7% was better on Mayo I found it much more effective. MAC is rare and I have found that many pulmonologist know little about it. We learn as we go. Our bodies are each different and so should be our treatment!

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Replies to "Remember we are all different. You cannot disagree,for all of us. For me after 4 years..."

With all due respect, I can and do disagree.....especially for myself and the fact that without lungs, sight and hearing are mute. The post I was replying to ask "for any disadvantages" and that's what I replied with. I as well have consulted with NJH along with my Chief Pulmonologist and ID's. All involved have agreed that treatment should be started sooner than later. Best wishes to you and what works for you.