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How to address PMR pain while decreasing prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Nov 6, 2023 | Replies (747)
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@alissahe

I’ve had PMR for a year. I’m on my 2nd attempt at tapering and stalled out at 7.5 mg again this time. Gave it two weeks but had such limited functioning that I’ve now gone back up to 8 mg. I’ll give myself the respite of less pain for a week or two and then try alternating days of 8 and 7.5.

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Replies to "I’ve had PMR for a year. I’m on my 2nd attempt at tapering and stalled out..."
janielou56 | @janielou56 | Oct 29, 2023

Dear @alissahe
Have you and your Dr. thought about combining your prednisone with Low dose Naltrexone (LDN)4.5
I believe that it's been helpful for me.
I was diagnosed with PMR eight months ago.
Was put on 20 mg of prednisone by my GP. The prednisone started taking my pain away within days to a tolerable level But I struggled with lots of side effects.
Two weeks after that my functional doctor included LDN.
After reading some articles about
Splitting prednisone I got permission to take most of my prednisone in the morning with my breakfast. Then 1 mg of prednisone at night before I went to sleep so that I could wake up without much pain and get a good sleep.
Today I'm down to 6mg of pred 5+ LDN in the am and 1 at night bf bed.
My functional doctor also said that if I had pain anywhere I could take Traumeel ( an analgesic) as needed. So far the journey has been tolerable and my moon face has slowly disappeared.
Good luck to you in your PMR journey.

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