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Anyone here with Hurthle Cell (Oncocytic) Carcinoma?
Thyroid Cancer | Last Active: Jan 19 8:13am | Replies (62)Comment receiving replies
Thank you for your response.
He’s doing great post surgery. He’s of course having to use a walker but he’s done so good with it.
We’re still trying to figure all this out and get more clarification. The oncologist we saw is who saying we need to see an endocrinologist which I do agree with that but the oncologist is who is saying he wants to be the “quarter back” I’m wondering if we just need an endocrinologist or is there a endocrinologist oncologist? Until this I didn’t realize there were orthopedic oncologist.
We just want to do what ever we can to make the right decisions.
Replies to "Thank you for your response. He’s doing great post surgery. He’s of course having to use..."
I have hurthle cell carcinoma. I had an endocrinologist, a primary care, an oncologist and they consulted other specialists. They worked collaboratively... it was sometimes complicated to know which to report what to... but if I was sending emails I included all ... and they were willing to consult with each other. You do want the expertise from all in unique cases... and you do want a "quarter back" who is willing to ensure all the peices fit together. Nothing forgotten. How awesome you have someone who cares enough to step up and take that role.
I always follow a few guidelines for myself.
1) if I have a CT or scan MRI etc or even hospitalization happening I make sure that I let my other docs know.
2) if one Dr orders lab tests , I ask the others if they have any to add... so I don't have duplicate trips and stabs
3) if I have an MD/Specialist appt I always send an email...asking if there are labs I should do before the appt. If so , then I follow #2 again
4) if I have a big decision to make Ill try to hear input from the other relevant person ...being careful not to get to many inputs. But I am blessed that all my Dr once called a group mtg and reached a preferred path for me as a group ... that truly did support me
5) I never allow myself to be pushed for a decision to fast. I don't hesitate to say" I need to pray on this overnight" unless I'm in an emergency and it's urgent.
6) quality of life matters ... but I also know some poor quality for a while may be necessary to give me an opportunity for a longer life
Hoping this helps and that you heal quickly!
Hi @melijord95, how is your dad doing? Has he been referred to or already seen an endocrinologist?
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You are asking good questions, @melijord95. If I were you, I would call the office and ask the doctor to clarify what he means. I might also inquire if he has a referral to the endocrinologist that he wants your dad to see.
I look forward to hearing from you again as you seek the best providers for your dad. Will you let me know how your search for the endocrinologist goes?