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Is everyone with pNETs on creon?
Neuroendocrine Tumors (NETs) | Last Active: Apr 26 11:19am | Replies (20)Comment receiving replies
Hello. My husband is in the same condition as you but a little worse. He was lucky to be diagnosed within a couple months and had lost 20 pounds, but was very sick. He is not on creon as it did not work for him and made him sicker. He has been on Cap/Tem for 13 rounds plus he’s been on a monthly injection of lanreotide and we are wondering if you have had this monthly injection as well.
Replies to "Hello. My husband is in the same condition as you but a little worse. He was..."
Hello. By the time he was diagnosed he had lost almost 40 lbs. He has only been on Lanreotide monthly and creon with meals. Just recently he has had his first round of PRRT Feeling better than he has in awhile. It took about a week after treatment to feel this good
CAP/TEM has never been offered as an option yet Is this chemo therapy? Is it pill form? I see a lot of people with the same diagnosis are on this. I wonder why it wasn’t an option for us I guess it’s worth asking the Dr
Thank you for the reply
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I have only been on CAPTEM. Nothing else.