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Non treatment of MAC

MAC & Bronchiectasis | Last Active: Nov 5, 2023 | Replies (40)

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@dwood003

Thanks Sue,
A few months after having a lobectomy of the LUL in 2018 a waxing and waning. airway infection starts showing up on my CT scans every 6 months. Earlier this year I started twice daily nebulizing albuterol and 7% saline, after 5 months I became so depressed I stopped, I felt much better within a week. I changed pulmonologists and got referred to an ID association Dr. In between all of this it was discover during the surgery the nerve to my left vocal cord was cut leaving it paralyzed and not closing the gap between the right side. They injected it with a filler, which is starting to deflate, I have a surgery for a permanent solution scheduled. I know in order to produce sputum to culture I need to start nebulizing again. I'm 85 yrs old, this is not the way I planned on spending my twilight years. Based on my experiences, when I think I know how some one feels, I do, as you most certainly do.
Don

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Replies to "Thanks Sue, A few months after having a lobectomy of the LUL in 2018 a waxing..."

I hear you! Though hopefully not [quite] to my twilight years, being a decade younger than you. But many days I look at that lineup of nebs, meds, inhalers, Aerobika and pills, and the list of exercise and stretches I must do just to keep moving, and wonder "What if I just chuck it all and see what happens?"
Then my grands show up, wanting to play (today is our Halloween) or a friend calls and we plan a lunch date...
The 7% sodium wasn't my biggest problem - it was the albuterol. My pulmo switched me to 2 puffs on an inhaler, wait 15 minutes then neb the saline. It was much easier on my body the the nebulized version, which sent my essential tremor off the charts.
Maybe that can work for you?
Sue