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← Return to Non treatment of MAC
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Oh Miriam, I know how frustrated you must feel. Yes, sometimes the treatment doesn't eliminate the infection - as in my case and possibly yours as well. But lowering the infection is sometimes enough - I have managed to stay off the meds for 4 years now with airway clearance, exercise and a good diet. Also by keeping my asthma well controlled & avoiding respiratory bugs.
It will be interesting to hear what the doctor has to say. After the second post-treatment but still-positive culture, my doc has decided as long as my bronchiectasis remains stable and I don't feel sick, we just wait.
Do you feel healthy (other than the aftereffects of the meds)? And is your cough gone?
Will you let me know what your doctor advises?
Sue
Replies to "Oh Miriam, I know how frustrated you must feel. Yes, sometimes the treatment doesn't eliminate the..."
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Hi Sue
Met my pulmonologist yesterday and had a good conversation about my lungs. He told me that yes my ct still showed the infection but culture are negative. Like you mentioned as long as i am not feeling sick we continue to monitor, having ct every 6 mo and see what changes are happening or not. He says that i have lots of nodules, they wax and wane, but need to follow up in those due to my neck cancer. I worry about that. He told me to enjoy my life and do the airway clearance, excercise, my albuteral, and use my flovent when i feel wheezing to clear it. I just needed to realize that this will be with me for the rest of my life. I thought the meds would eliminate it.
Glad to be in this group to be able to share how we feel without being judged. Thanks for your thoughts. On my way to play golf and walk its my excercise! Life is good and all will be well😘