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Lupus pain

Autoimmune Diseases | Last Active: Jan 1 10:21am | Replies (19)

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@dee5

It is a skin hardening disease. I have a lot of scarring on my lungs. It sounds like crackling of glass. They do Chest Ctscan to monitor the lungs. My esophagus is involved also. I have an appointment with the rheumatologist. Need to discuss a lot of things. Coming to an end of 2 years of using Tymlos for my osteoporosis. Not taking Rituxin for lungs so need to discuss replacement. It’s never ending. Lol

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Replies to "It is a skin hardening disease. I have a lot of scarring on my lungs. It..."

I’m giving you a big hug 🫂. I have an idea how hard it must be. You are in my prayers.
I’m interested in what you’ve experienced with osteoporosis. Last dexa, 2 years ago, I was diagnosed. I’m not happy with taking a drug that increases my bone because my spine xray shows bone spurs from my c-2 to s-2.