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Non treatment of MAC

MAC & Bronchiectasis | Last Active: Nov 5, 2023 | Replies (40)

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@msk

Sue i just finished my treatment. Had my ct a few weeks ago. The scan showed mai infection. Treein bud and waxing and waning nodules. I thought the lungs would be clear. I feel the meds didn’t work. It probably kept it from getting worse. Going to lung doctor this Monday. Will wait and hear what he says. Wondering if this is what all see after ending treatment.
Miriam

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Replies to "Sue i just finished my treatment. Had my ct a few weeks ago. The scan showed..."

Oh Miriam, I know how frustrated you must feel. Yes, sometimes the treatment doesn't eliminate the infection - as in my case and possibly yours as well. But lowering the infection is sometimes enough - I have managed to stay off the meds for 4 years now with airway clearance, exercise and a good diet. Also by keeping my asthma well controlled & avoiding respiratory bugs.
It will be interesting to hear what the doctor has to say. After the second post-treatment but still-positive culture, my doc has decided as long as my bronchiectasis remains stable and I don't feel sick, we just wait.
Do you feel healthy (other than the aftereffects of the meds)? And is your cough gone?
Will you let me know what your doctor advises?
Sue

Miriam
My doctors did not expect improvement in the CT with treatment but hopefully no worsening. My cultures have been free of MAC for two years but CT no better
Have you had recent cultures? This always seems a more reliable indicator of active disease, at least for me as I never had symptoms