I’m newly diagnosed with Sjogrens, would like to meet people, communicate, if possible with patients in NYC metro area. Think I need a rheumatologist with more expertise in this, nuch sicker than expected. Saliva med not working consistently, think, nut not sure small nerve fiber(‘ involvement. Severe joint pain, coughing,, with gobs phlegm & dry hacking , vasculitis, eyes pain, visual issues ( but will see eye doc soon.… more.. my doc was great , but used it out after a year of blood work failed to diagnose. Bad flare, lip biopsy diagnosed. Was given informational leads by someone in this site, but If you live vaguely in nyc area, would like suggestions for rheumatologist familiar with Sjogrens as a systemic not just minor dry mouth, dry eyes disease. Don’t remember rules of this group either post to me here or by private message.

Jump to this post