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DiscussionWould like to hear from people with Sjogrens
Autoimmune Diseases | Last Active: Nov 14, 2023 | Replies (76)Comment receiving replies
Replies to "I’m newly diagnosed with Sjogrens, would like to meet people, communicate, if possible with patients in..."
@cblue, Mayo Clinic Connect is a public forum and it is not recommended to post a personal email address publicly. Please use the Private Message function. It is secure. Learn how in the Help Center https://connect.mayoclinic.org/help-center/
I might also add that by sharing here in the forum, you are connecting with several people where all can benefit from group support.
Hello again, @cblue ! A good way to find a doctor is to check out these two websites:
GARD https://rarediseases.info.nih.gov/. This one if for genetic and rare diseases. They also keep a list of doctors
https://rarediseases.org/ This is the rare disease organization. Their website is great.
You might also be interested in this newsletter. https://www.sjogrensadvocate.com/. You have lots of work to do, but be sure to write down your questions!
And, yes, the moderator will remove your email.
I’m sure you will meet other members. Will you stay in touch and let me know what you learn?