DCIS breast cancer?

Posted by jlc082261 @jlc082261, Jun 22, 2023

Has anybody here in this group been diagnosed with DCIS breast cancer?

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@galbooboo

I was diagnosed with DCIS in January 2023 and had a lumpectomy with good margins, progesterone and estrogen +. I am 68 years old and decided
not to do any radiation. I take tamoxifen 20 mg/ day. My only side effect has been hot flashes, which are not too bad. There are many worse diagnoses-stay hopeful and positive!

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Any lymphs with cancer? I had 1 out of 3 with cancer

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My DCIS area was so small that the surgeon saw no reason to check lymph nodes.

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Had Dcis stage 2 with 1 lymph and 1 had micro. Took 4 the other 2 were no cancer found I also did lumpectomy with good margins. And radiation for 6 weeks and taking anastolzole for 5 to 7 years. I’m 59.

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@chickenmom10

Had Dcis stage 2 with 1 lymph and 1 had micro. Took 4 the other 2 were no cancer found I also did lumpectomy with good margins. And radiation for 6 weeks and taking anastolzole for 5 to 7 years. I’m 59.

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Hello, I feel for all of you posting here and having to deal with cancer. I have two different types of breast cancer in the same breast. One is an IDC ( invasive ductal carcinoma) and the other one is a DCIS ( Ductal carcinoma in situ).
The DCIS is a non-invasive form of breast cancer where abnormal cells are found in the milk ducts of the breast but have not spread beyond the ducts into surrounding breast tissue. Since DCIS is considered non-invasive, it is, by definition, confined to the milk ducts and does not involve the surrounding lymph nodes.
So, chickenmom10, I don't understand why you have a DCIS with lymph node involvement?
Best of luck to Everyone dealing with this challenging disease!

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@jojo22

Was diagnosed with multi focal DCIS in November 2022. Had bilateral mastectomy January 2023. They removed two lymph nodes on each side, all clear. Was back to running, weight lifting and all my normal activities by March. No need for radiation or hormone inhibitors.

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Awesome comment. Thank you for this

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That is what my oncologist said it started in my milk ducks and spread to 2 lymphs.

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@chickenmom10

That is what my oncologist said it started in my milk ducks and spread to 2 lymphs.

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It starts out as Ductal Carcinoma meaning cancer developing in your milk ducts. If it does not spread from your milk ducts it’s called Ductal Carcinoma In Situ or DCIS. It’s in place.
When Ductal Carcinoma spreads to surrounding tissue it’s no longer DCIS as it’s not “ In Situ”. It’s now called Invasive Ductal Carcinoma or IDC. DCIS is considered stage zero whereas once you have movement to lymph nodes one is like a stage 1B or so.

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Hi
I was just diagnosed in Oct this yr with dcis insitu. Surgery is Dec 15. I have been told it's not large , will be doing radiation after. Fearful of radiation as I have heart issues osteopenia with fracture t8. Anyone have their experience with this? I have read posts about doing radiation on your stomach, does it make a difference? Having a difficult time accepting this diagnosis.

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@galbooboo

I was diagnosed with DCIS in January 2023 and had a lumpectomy with good margins, progesterone and estrogen +. I am 68 years old and decided
not to do any radiation. I take tamoxifen 20 mg/ day. My only side effect has been hot flashes, which are not too bad. There are many worse diagnoses-stay hopeful and positive!

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Hi
I have heard horror story's about tamoxifen. I am highly sensitive to meds and already take alot of scripts. Does this med not stop all Estrogen? My menopause was horrid on hrt for 10yrs up until dcis diagnosed

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Hi. I was very afraid to try tamoxifen also, after reading about all of the possible side effects. My oncologist encouraged me to try it- most patients tolerate it very well. I’m happy that I have zero side effects.
As for how tamoxifen works- it does not “stop estrogen” production. Tamoxifen blocks estrogen from attaching to cancer cells. Estrogen is fully present in the body, but the drugs stop it from connecting with and fueling the tumor.
It’s an old drug that has been proven to be effective. I would encourage you to try it, if your doctor is recommending it.
Good luck. I know this is scary.

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