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@ecmoandrrt

Howdy. Just retired and age 67. Asthmatic since birth and now have Bronchiectasis. I'm also a Registered Respiratory Therapist, ECMO Specialist Perfusion, Transports, NICU/PICU level IV and CCU and Adult ICU and ER Specialist.
35 years.
Ahh Gordonia. Rare. Do you happen to be immunocompromised? Doxy is a good antibiotic for Flu H.
Ok my experience with just getting(two years ago) Bronchiectasis(my Pulmonologist told me 40 years ago this might be my future). I also get bacterial Bronchitis every year(when I was young that ALWAYS stumped the pulmonologist Lol).
Great right?
DONT SMOKE!!!!!!!

I cough all the time. Go through a box of Kleenex in 3 days. Bronchodilators do nothing for my disease unless I'm having an Asthma attack. If my sputum turns yellow and then green? Out comes my Levaquin. Also the mythology of your temps being normal at 98.7. Hogwash everyone is different. Some have temps that are normal at 96.5 etc. If you feel bad? You know your body best. If the bronchodilators help keep using them!

Do you use MDIs? I have an air compressor to take nebulizers. It goes up to 8 LPM. And takes 30+ mins to nebulize my Albuterol and Saline. If you have half a cup of product left that's not good. Your not getting it. I don't know what you LPMs are but you might have less then mine at max. Wait for the product to disappear. Take as deep a breath as you can and hold for a few seconds in your lungs. Deep and slow. Watch some TV or listen to music. RELAX. Deep and slow.

Ok so truth. I've taken care of many Bronchiectasis patients.
This is the only thing that works for me. Antibiotics. Cough suppressant that effing works??????? Vicodin or Hycodan cough syrup. Yes really. The problem is Drs giving us what we really need!!!!! OMG it's addictive or can we try something else!!!!!! NO. Addiction??? I'm not abusing Vicodin!!!!!!!! I'M LIVING WITH CONTINUOUS COUGHING!!!!! Chronic illness.

Yes go to the Mayo if you want. You don't need to be worse off.

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Replies to "Howdy. Just retired and age 67. Asthmatic since birth and now have Bronchiectasis. I'm also a..."

Thank you for your reply. I’m not particularly immune compromised , but have over my lifetime had many many pneumonia and bronchitis episodes. I’ve been hospitalized for pneumonia at least 4 times in my lifetime, most recent was 2018. I do believe I had pneumonia last year. It was one bronchitis attack after another from October through February.
Also, I have an Omron nebulizer which I sent back to them after 1st use when it didn’t seem to work. They sent it back saying it was fine. Perhaps there’s a better product out there somewhere that may work better.

YES YES YES! Finally a comment supporting my frustration with the EFFECTIVE AND OCCASSIONAL SUPPRESSION of a continual cough!!!
Thank you! I have used narcotics in this way for 20 years. No overdose, I'm not selling it on the street, and if I was "addicted" before my bE diagnosis, I would sure like to be again!!!