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Diagnosed with sarcoma? Let's share
Sarcoma | Last Active: 4 minutes ago | Replies (859)Comment receiving replies
I was just diagnosed with a myxofibrosarcoma on my left arm. Trying to identify the best surgeon to remove the tumor in the western United States. We live in Boise, Idaho.
Replies to "I was just diagnosed with a myxofibrosarcoma on my left arm. Trying to identify the best..."
Dr Seidel in Scottsdale removed the myxofibrosarcoma from my left forearm 3/1/23.
He is considered a top sarcoma surgeon.
Please Google him.
I would try to get into MAYO if you can.
They did not accept my Medicare Advantage Plan
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Hello @lgshoaf and welcome to the Sarcoma discussion on Mayo Connect. I can understand your concern about getting the best surgeon to remove the tumor. I found some information on this type of cancer on Mayo Clinic's website. Here is the link to that information, https://www.mayoclinic.org/diseases-conditions/myxofibrosarcoma/cdc-20387740.
If you would like to consult with a Mayo doctor who specializes in this type of surgery, here is the link to appointment information, http://mayocl.in/1mtmR63.
I can understand that you would like to find a doctor somewhat close to home, however, when you are dealing with a rare form of cancer, it is usually worth the trip to a cancer center of excellence.
In reading about this type of cancer, I see that it is often painless. Was this your situation as well or did you have discomfort?