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New developments in bronchiectasis

MAC & Bronchiectasis | Last Active: Nov 13, 2023 | Replies (10)

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@gtokaren

I was diagnosed with Bronchiectasis (and asthma and middle right lobe syndrome via CT scan) a couple of months ago. I also had the sputum AFB tests and culture. The culture came back with Gordonare Bacterium, which they don’t treat, and earlier stain test was positive with Influenza-H, which I was on doxycycline for 10 days and it helped (July). I recently had an exacerbation of the condition which is now in its 4th week. I have coughing spells throughout the day and very productive I might add. I have fevers with frequency ranging from 99 - 100 degrees and don’t feel myself. My Pulmonologist wants me to just use the Brelio inhaler on a daily basis, and the nebulizer, which doesn’t seem to help me. The liquid does not diminish in the container after 20 minutes of use. I’m seeing my primary care doc on Monday. Can anyone advise what question I should ask? I also want to ask if the liquid left in the nebulizer after 20 minutes is normal - it stays at max. My family wants me to go to the Mayo Clinic for this, but do I need to be worse off for this? Thanks for any help you can provide.

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Replies to "I was diagnosed with Bronchiectasis (and asthma and middle right lobe syndrome via CT scan) a..."

I found that the 7% saline left in the small holes of the bebulizer diverter may be difficult to rinse completely out and it became crystals after drying, which would block the passage of air. It cause that 4ml saline cannot be finished in 20 or even 30 minutes.
What I did is put the nebulizer in boiling water for very short time then take it out to a clean plate for air dry,It works at first couple times but then problems come out again..Now I use 90% alcohol rinse for disinfecting neb ,after I rinsed it under very warm water.If it still doesn’t work, I changed it to a new one.I’m using side stream portable neb cup.They’re pretty cheap.
Anyway if you spend 20 minutes still unable to finish 4ml saline it means your neb is stuffed.