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← Return to Non treatment of MAC
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MAC & Bronchiectasis | Last Active: Nov 5, 2023 | Replies (40)
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It wasn't available to me when I was being treated (four years ago now) - Back then it was only being used in a clinical trial that I didn't qualify for. As a retired Fed, I would be jumping through the same hoops as you if I needed it today - except, I already "failed" treatment once. I was on the 3 antibiotics for 18 months and never did get a negative specimen, but my lungs did improve.
So far so good on airway clearance & 7% saline 🤞
I hope your appeal is successful - my sis-in-law has been successful at appeals through Tri-Care express scrips for other issues.
Sue
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Thanks Sue,
A few months after having a lobectomy of the LUL in 2018 a waxing and waning. airway infection starts showing up on my CT scans every 6 months. Earlier this year I started twice daily nebulizing albuterol and 7% saline, after 5 months I became so depressed I stopped, I felt much better within a week. I changed pulmonologists and got referred to an ID association Dr. In between all of this it was discover during the surgery the nerve to my left vocal cord was cut leaving it paralyzed and not closing the gap between the right side. They injected it with a filler, which is starting to deflate, I have a surgery for a permanent solution scheduled. I know in order to produce sputum to culture I need to start nebulizing again. I'm 85 yrs old, this is not the way I planned on spending my twilight years. Based on my experiences, when I think I know how some one feels, I do, as you most certainly do.
Don