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Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions
Neuropathy | Last Active: 7 hours ago | Replies (43)Comment receiving replies
Hello,
I have CPID along with a myriad of other things. Six years ago, I started on Octagam. It made me very sick for about 3 days after treatment. I then switched to Gammagard, which worked well for me. Then insurance quit covering that and put me on Panzyga. This has been great. Hang in there! They will get you straight.
Replies to "Hello, I have CPID along with a myriad of other things. Six years ago, I started..."
@lcknifer after reacting to 2 other IVIG meds I have been on Octagam. After a year or so I quit having the 2 or 3 side effect days. 8 days ago my dose was raised 25% and on day 8 I’m still unable to do much but lay around and pray I feel better tomorrow. Has any one experienced this with Octagam?
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Can you tell me what those two drugs,Gammagard and Panzyga did for your symptoms.
I did previgin IVIG and it did nothing for me.
None of my Neuro docs mentioned those for my CIDP.