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← Return to Non treatment of MAC
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After almost 2 years, and reading many comments on this site, I am wondering how I should interpret all this information! After 14 months on the big three, I stopped taking them. After several weeks I started getting extremely weak again, and was having to lie down more often. I am unable to do some of my normal 'chores' at home. BUT...I now wonder if this is actually due to stopping the meds, or something else. About 4 years ago I developed this severe weakness, and was having to sleep MUCH more than normal. It is at best, depressing. I finally got back on the meds, but NOT the Rifampin. [eye problems, and hearing loss] I see very little, if any progress towards feeling better. **Can anyone tell me if the weakness and fatigue are actually due to the MAC?
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Donna,
Has your doctor checked your thyroid level? I was experiencing fatigue, hot flashes, severe night sweats. I thought it was the MAC worsening, but it turns out that my prescription for levothyroxine was too high. Apparently, one’s need can change over the years. It’s improved now that the prescription has been reduced; the night sweats aren’t gone, but they are reduced. My blood pressure is normal (whereas it had been very low). Good luck!