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DiscussionRaynaud's Syndrome: Anyone want to talk about Raynaud’s?
Autoimmune Diseases | Last Active: Dec 25, 2023 | Replies (225)Comment receiving replies
Replies to "I am 74 and was recently diagnosed with Raynauds.I was worried because my toes and fingertips..."
I have had Raynauds since I was 16..am 68 now. I keep my torso warm by wearing tank tops as a base layer almost year round. I apply a small amount of Nitro-bid ointment (prescription) to my wrists and top of hands which helps dilate the blood vessels without a systemic approach. I also have a heated vest, rechargeable hand warmers. At home a heating pad helps when stationary and I use a hairdryer if my fingers start to get numb. Warm water works, but you must dry your hands quickly and thoroughly or they will chill again. The heated seats and steering wheel on my car are worth every extra penny they cost.
Good Morning. I am 92 and have had this disease since my 30's. I think your doctor may be wrong. First of all get some open finger compression gloves to wear during the day. They will help to keep your fijgers warm, and let you do whatever house work you need. They are also very inexpensive if you check out the Temu web site, or Wal Mart, or Amazon. Second, make some small packets filled with rice that you can throw in the microwave for 30 seconds. These can be put in your pocket and keep your hands warm. I like silk because they feel so good. If your fingers are turning black, this is serious. Frost Bite, and loss of limbs. It is extremely important to get that blood circulating. Have you seen how the Olympic Competitors increase circulation to their arms and legs. They rotate the arms, which make the blood flow to the hands. Remember warmth and circulation are the important factors for those hands. Many years ago, I was told by a physician that the Sympathic Nerve System is the problem, and there have been some experiments with injecting the Nerve System, when Raynauds becomes serious. You might ask your doctor about this. Have you seen a Neurologist?
Gina5009
I am 56 and was diagnosed with Raynaud’s syndrome about 1 1/2 years ago. I also have multiple sclerosis and multiple autoimmune diseases. My rheumatologist told me there is an ointment or cream (?) that can be used as needed to help dilate the vessels. I haven’t started using anything yet as I hadn’t been having that much trouble with it, but am going to revisit the discussion at my next appointment as I’ve begun having more problems with it as of late. Please talk to your doctor again and maybe get a referral to rheumatology for further advice.
I have had this in my hands and feet for years. The rest of my body can be warm, except hands and feet are cold and nails are blue/purple. It does to go along with other autoimmune diseases so i would insist your doctor run the numbers. The most painful is picking up ice to put in glasses. I keep warm water running in the sink to put on my throbbing fingers. A warm soab in the tub will usually help with both. He is correct in that there is no cure. I also have fibromyalgia, both thyroid diseases, osteoarthritis and the jury is still out if I have systemic lupus. Lupus and Raynauds do tend to go hand in hand. That is why I would have a panel ran for autoimmune diseases. I wish you the best. Praying for you.