I love to hear the optimism in your comment "I feel pretty lucky to have the quality of life I have while dealing with this monster..." because you have really had a rough go.

I count myself lucky because even though I was very sick in the beginning, and the daily antibiotics almost wrecked me, I was able to recover without such awful complications, and have managed to stay off meds (but not MAC-free) for almost 4 years.

This just emphasizes how differently each of us is affected by the disease.
I wish you continued quality of life, and like everyone else here I'm waiting for an actual cure for the bacteria.
Sue