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Non treatment of MAC

MAC & Bronchiectasis | Last Active: Nov 5, 2023 | Replies (40)
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@suzyqueue

I'm just over 5 years as well. My cavity did shrink to 4 cm. My cavity is in my left upper lobe. My right lung has collapsed twice but after the 2nd time I had the talc pleurodesis procedure done (3 years ago) and it's held strong (fingers crossed, knock on wood etc - 🙂 )
I know how horrible I was in the beginning of this so I not dare complain much. I feel pretty lucky to have the quality of life I have while dealing with this monster.

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Replies to "I'm just over 5 years as well. My cavity did shrink to 4 cm. My cavity..."
Sue, Volunteer Mentor | @sueinmn | Oct 27, 2023

I love to hear the optimism in your comment "I feel pretty lucky to have the quality of life I have while dealing with this monster..." because you have really had a rough go.

I count myself lucky because even though I was very sick in the beginning, and the daily antibiotics almost wrecked me, I was able to recover without such awful complications, and have managed to stay off meds (but not MAC-free) for almost 4 years.

This just emphasizes how differently each of us is affected by the disease.
I wish you continued quality of life, and like everyone else here I'm waiting for an actual cure for the bacteria.
Sue

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