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Lupus pain

Autoimmune Diseases | Last Active: Jan 1 10:21am | Replies (19)

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@twinkie23

Benlysta is a biologic for SLE without kidney involvement. It’s now available in a self injection but when I took it, only by infusion. You said your scleroderma is internal. How did they diagnose it? I thought it affected the skin.

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Replies to "Benlysta is a biologic for SLE without kidney involvement. It’s now available in a self injection..."

It is a skin hardening disease. I have a lot of scarring on my lungs. It sounds like crackling of glass. They do Chest Ctscan to monitor the lungs. My esophagus is involved also. I have an appointment with the rheumatologist. Need to discuss a lot of things. Coming to an end of 2 years of using Tymlos for my osteoporosis. Not taking Rituxin for lungs so need to discuss replacement. It’s never ending. Lol