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Hi @twinkle23
I was diagnosed with MCTD back in 2002. I used to be in a lot of pain in those days. Dr started me on Hydroxychloroquine. Because I had Scaladerma more so than Lupus, they had me on an infusion called Cytotoxic (I could be spelling it wrong) Got a reaction from it so they then put me on Rituxin which I have now stopped this year as it is giving me too many upper respiratory infections.
What I will tell you is that once I quit working thus lowering my stress and starting warm water therapy at a local gym did wonders to my pain. These days I hardly have Lupus flair ups. And please talk about your pain with other people. It really helps! I hope you find a medicine that works for you. Maybe time to change your Dr? I am lucky I have a Dr who is great and open to receiving emails from me 24/7. Praying for you. 🙏
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I’m familiar with Cytoxin and Rituxin. What will you replace them with? Is your scleroderma controlled now? I was treated with Benlysta for five years but kept having infusion reactions so was taken off it. I was then prescribed Methotrexate which gave me sores in my mouth and nose. It’s been quite a ride. I love my doctor so won’t be changing him, just meds. I may suggest the injectible form of Benlysta. I felt the best when I was on that, minus the infusion reactions.